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News & Events


1/8/2008  We had 52 transplants in 2007 and 1 so far in 2008.
2/12/2008  There were 4 transplants in January, none so far in February.
3/11/08  4 in January, 4 in February, and 2 so far in March.
5/11/08  3 TP's since last meeting (and 1 in May)
6/12/08  1 TP during the June meeting, one later that day, and one other brings the year total to 20 (somehow).
7/3/08     24 transplants so far - 2 in May, 5 in June and one in July (today!).


Hello to all!

I wanted to forward this on to you to give you the opportunity to share your stories and
to participate in raising donor awareness (and to exercise your excellent writing
skills!).

If you know of anyone who I may have missed in this email please pass this information
along or have them contact me so that I can forward this to them.

If you have questions about the process you can contact Andrea Gregg. Her contact
information is at the bottom of the email.

Angela Wagner
206-598-2676
 

 From: Andrea Gregg
 Sent: Tuesday, May 06, 2008 3:19 PM
Subject: Exciting opportunity for transplant recipients!
 

Floragraph of Johnathan Sim and his family.
The 2008 Donate Life float, "Life Takes Flight"

On January 1st, 2008, in Pasadena, California, a beautiful float featuring four hot air
balloons headed down Colorado Boulevard to the cheers of thousands of on-lookers. The
faces of 40 donors floragraphs attached to the balloons smiled down at the 24 recipients
riding on the float. The Donate LifeSM float, "Life Takes Flight", won a judges award for
most inspirational in the 119th Tournament of Roses Parade. On January 1st, 2009 a
LifeCenter Northwest donor will be honored and we hope that one of your transplant
recipients will be riding the float and hearing the cheers.

Astellas is sponsoring a national essay contest to select 5 transplant recipients who will
travel to Pasadena and join the float riders, all expenses paid. We would like your help
in promoting the opportunity.

The link in the message copied below provides the details and further links to past
winning essays.

Astellas officially launched their 4th Annual 'Ride of a Lifetime' contest, which provides
an opportunity for five transplant recipients to ride on the Donate Life float in the 2009
Rose Parade. Once again, the 2009 contest will require transplant recipients to write a
short essay of 500 words or less describing how their life has been transformed by
transplantation. Patients will have until June 13, 2008 to submit their essay through
www.transplantexperience.com or via mail (see your transplant center for entry forms).
The Astellas judging panel is looking forward to reading all of the essays!

The media exposure we can generate for donation is huge. Last year, the Living Legacy
Foundation honored Johnathan Sim and his family. His image was depicted in a floragraph
and the story was covered by local television stations and print media. Just imagine the
coverage we could get with the addition of a recipient as a rider.  Living Legacy
Foundation will promote donation activities surrounding our participation in the Rose
Parade with press releases and media outreach. It would be wonderful to be able to tell
the stories of both a donor and a recipient.

We encourage you to tell transplant recipients about this exciting opportunity. And hope
you have clients who would like to enter the contest.

Sincerely,

Andrea Gregg
Shelby Slagle

Manager of Community Affairs
Hospital Services Program Manager

Living Legacy Foundation at LifeCenter Northwest
LifeCenter Northwest

(425) 201-6568   |  Cell (425) 301-6440
(425) 201-6636  |  Cell (206) 604-6330

andrea.gregg@livinglegacyfoundation.org
Shelbys@lcnw.org



The first heart/lung transplant at the UWMC was performed August 9. Patrick Farris. a 31 year old man from Richland, was the recipient. His sister had received a heart transplant 11 years ago. They both had a rare inherited condition that made them susceptable to heart problems. Patrick also had CF (I believe). One article can be found at http://www.king5.com/health/stories/NW_080907WAB_heart_lung_transplant_KS.19f21379.html.    The story got a lot of local coverage and more info can be had by checking the other local news sources.

Angela sent along the following two links to stories of interest. Ex-con, cystic fibrosis patient gets lung transplant, and Shellyan Shaefer Pearson, , the first pediatric lung transplant, 18 years ago.

Mark Wilson's transplant

The information about the television show depicting Mark's transplant turned out to be incorrect. The program on Organ Transplant was rescheduled and should be on UWTV Mhttp://www.uwtv.org/index.aspx, on the following dates.

Tuesday April 10 at 1:30pm and 8:30pm
Thursday April 12 at 7:30am
Saturday April 14 at 1:30pm
Sunday April 15 at 8:30pm

Mark and Kathy expect to attend the April meeting (they live in Alaska). There may be a possibility that we can watch the show as a group at the meeting.


Geoff and Hercules make the news again.

The following article was printed in the Seattle Times on Tuesday, Feb 13, 2007.Fat Oregon feline gaining celebrity status


The Associated Press

PORTLAND Ñ Hercules, the fat cat who became famous after getting stuck in a doggie door while plundering another pet's food, has found his rotund self heading for the big-time.
A video of Hercules stuck in the door became a Web sensation. Martha Stewart Living will feature him in an upcoming issue in an article about how to help pets lose weight, which Hercules has done, sort of.
He may become spokescat for a low-cal cat food and a Canadian admirer has made a belated try to buy Hercules' sperm for breeding purposes. Unhappily, Hercules went to the vet some time back.
But Hercules seems happiest with his owner, Geoff Earnest, who had given him up for lost.
"I think he's one of the best things that's ever happened to me," Earnest said. "He's like a brother to me. I just love him to death."
He was Earnest's constant companion for four years.
But Earnest, 31, has cystic fibrosis, and in June flew to Seattle for a rare but lifesaving double-lung transplant.
A housesitter watched Hercules, but the cat disappeared and Earnest assumed his beloved pet was dead.
But Hercules was doing just fine, sneaking into a stranger's garage, pigging out on pet food and leaving through a doggie door until the day he got stuck Ñ and was videotaped.
He landed at the Oregon Humane Society, which alerted reporters and Hercules leaped, sort of, to stardom.
 

In January Earnest saw Hercules on television.
These days, Earnest speaks often to schools and community groups and sometimes the cat tags along.
Earnest, who was told at 29 that he would die without a lung transplant, talks of his experience and encourages others to become donors.
And Hercules always gets a plug because he and the cat, he says, have something in common. "He came back from the dead like I did," he said.
Earnest walks Hercules for exercise every morning. Hercules has dropped about a pound but still weighs 19.6 pounds.
His veterinarian, Dr. Joshua Horner, says the cat could stand to drop three or four more.
But to Earnest, he's fine the way he is.
"He's just a big, big cat," he said. "I don't want to see him get any smaller."


Geoff's Cat makes the News


There is a news story on TV, today, January 12, concerning  Geoff Earnest , a June 5th, 2006 transplantee. Seems his cat Hercules, AKA Goliath, went missing about 6 months ago. He had been stealing cat food from a neighbor by entering their garage through a "doggie" door. That is, until he grew to 20 lbs and got caught in the door. He was taken to the pound and the story made the local Portland news. By then, he had been named Goliath by the pound or the news media. Geoff saw his cat Hercules on the TV news, and they were reunited. Just a brief mention of Geoff's transplant was made. If I have made any factual errors in this item, it is because I am trying to remember what I heard on two newscasts. Komo 4 News carried the story; included footage of Geoff. King 5 News also carried the story but apparently they didn't know that the cat's owner had been found. The King 5 story can be found at http://hosted.ap.org/dynamic/stories/F/FAT_CAT?SITE=KING&SECTION=MIDWEST&TEMPLATE=DEFAULT&CTIME=2007-01-12-16-43-47


IPF Support Group Meetings

Here is the schedule for the IPF support meetings

Nov 28th  At UWMC room BB1602
Dec. 26th  American Lung Association of Washington   3rd and Cedar Seattle
Jan. 30th  at  UWMC  room  CC408
Feb. 27th  American lung Association of Washington
March  27th UWMC   CC408
April 24th  American Lung Ass.
May 29th  UWMC  CC408
June 26th American Lung Ass.
July  no meeting
August  no meeting

Additional information about the IPF Support Group


Excessive Profits on Meds---Costco's cheaper drugs

Kathy Wilson, wife of Mark, a September transplantee, received an email from her Dad concerning the cost of drugs and the profits derived therefrom. I have no idea where the emil originated from so cannot speak for it's accuracy. It does, however, cite a news article by a Steve Wilson, an investigative reporter for  WXYZ Channel 7 News in Detroit. Both the email and the news article speak highly of Costco's drug pricing. Click here to view the email, and here to view the news item.


New York Times Article

Here is an interesting article from the New York Times, Lung Patients See a New Era of Transplants, which discusses the lung allocation process. This is dated today, Sept 24.


Northwest Lung Inc.

One of us, a fellow UWMC lung transplantee, John Lee has started a non profit organization to provide housing for some people who have to stay in Seattle while awaiting transplant.. This has been done in at least one other location (Colorado, I believe) apparently successfully. At present, he is in need of help with foundation grant writing. Once again, I will take the easy way out and just post his entire E-mail to UWLUNG.
My name is John Lee. I am a double lung transplant receipent 3/16/03 at the UWMC, Seattle. Soon after I received my transplant I began working on the creation of NorthWest Lung Inc. www.northwest-lung.org .

Early this year I received aproval from the IRS for 501 c 3 status.

Our mission is to provide residence housing for lung transplant patients who are required to relocate to Seattle as a condition of being placed on the transplant list.

We currently have one 1 br unit. We need many more.

Funding for the organization is currently coming from a small business I and my wife personally own. Johnnys NASCAR Gift Shop www.johnnysnascar.com .

We are looking a leasing another unit soon.

The store's capability, as it is a small operation, is limited and 2 units will tax us a lot. Therefore, I am currently looking for funding from any source, especially from established philenthropic foundations.

This presents a bit of a problem as I am just a dyslexic who flunked the 5th grade, the 7th grade 3 times, quit 4 weeks into the 8th grade and who took until I was in my mid thirtys to graduate from a two year college. My forte IS NOT government type forms and rules and regulations.

I am working with Angela Wagner at the USMC on placement of persons in our units. I meet her for the first time yesterday, Wed 7/26/03. She suggested that I e-mail uwlung.org in the hopes that you could put out info on your network and they would send info to all they know etc etc. in an effort to locate some one who has experience with "Fountation Grant Writing" will donate their time to help our mission.

We have no paid employees at this time. We have very little over head. All of the expensises to creat the organization, web site etc has been paid. We are positioned to be able to apply an overwhelming majority of the funding to provide actual direct help for pre/post lung transplant patients.

Those persons who's lives you will help thank you.

John Lee
President
NorthWest Lung Inc.

support@northwest-lug.org


Here they are! Photos of Bill Probstfield's transplant procedure, as promised by Bill at our April support meeting. http://www.leanners.com/BillsTX.htm Thanks for sharing these with us; Bill. If anyone doesn't know who Bill is, you can check him out on the 2005 Transplant page. For larger images but slower loading, you can go to http://www.uwlung.org/BillProbstfieldTP.html



 

Sadly,we have lost the following members.


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