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Sharing your experience: Correspondence between Transplant

Recipients & Donor Families

 

The decision to write about your experience is a very personal choice.


Sometimes donor families and transplant recipients choose to write to one another to share
information about themselves and/or their loved one- For some, this sharing helps the grieving
process or provides the opportunity to thank a donor family for their loved one's gift of life. It is
your choice whether or not you decide to write,
 

Will the transplant recipient(s) or donor family member(s) write back?


You may or may not receive a response to your correspondence. Many transplant recipients and
donor family members have said they are overwhelmed with emotion at this time in life. They
are both experiencing heightened emotions through grief or gratitude that are often very difficult
to express through written communication. Some transplant recipients or donor family members
may take several months or even years before they feel comfortable writing.
 

Written Communication

What to include:


• Your first name only.

• Your job or occupation.

• The state (not city) in which you live.

• Your family situation, such as marital status, children/grandchildren or hobbies

• Any personal information you choose to include about how the donation/ transplantation
experience has impacted your life

• Since the religion or beliefs of the recipient/donor family unknown, please consider this
if you are including religious comments.

When writing to donor families you may wish to include the following information.

• Describe how long you waited for a transplant.
(What was the wait like for you and your family?)

•  Explain how the transplant has improved your health and changed your life. (Can you
participate in activities now that you couldn't before your transplant?)

•  Explain what has happened in your life since your transplant. (Did you celebrate
another birthday? Did you take a vacation or accomplish a lifelong dream?)

•  Tell the donor family about your hobbies and interests.

• Recognize the donor family and thank them for their gift.

Sample letter from recipient to donor family


Dear Donor Family,

I can't begin to express in words my gratitude for your selfless, compassionate gift of your son's
liver which saved my life- I am so moved that even in the midst of your intense grief, you
thought of saving my life, the life of a complete stranger.

I want you to know that because of your life-saving gift, my friends and family, and their friends
and families have become more aware of organ donation and the good that can come out of a
tragedy. Your gift has touched so many more people than you know.

I am so truly grateful to your family for giving me a second chance at life. Please know that I am
truly making the most of it by taking excellent care of myself and striving to live a meaningful
and helpful life.

Sincerely and gratefully yours,

The Recipient

Sample letter from donor family to recipients


Dear Family;

It has been a year since we lost our daughter and you received her gift of life. We have thought
about you and kept you in our prayers. We would appreciate hearing from you, hopefully that
your organ transplant has been successful. We feel a special bond with you; you are a
continuation of our daughter's life. We would like to tell you the story of her life and to learn
about you and your family; if you would care to share with us. We hope you will write back.

Naomi's parents and siblings

Sample response letter from donor family to recipients


Thank you for the lovely letter you sent us shortly after you received Naomi's gift of life. Your
sincere thankfulness for the gift and your compassion for our loss have comforted us. We have
read and reread your letter many times and have shared it with other family members and
friends. Although we cry each time we read it, we really appreciate your thoughtfulness towards
us. Although we would of course rather have that kidney in a strong, healthy Naomi, we do not
have that choice. We are so glad that what became useless to her and to us has been so
wonderful for you. We hope and pray that now, a year and a half after your transplant, you are
happy and healthy.

Please keep in touch!
 

Closing your correspondence:


• Sign you first name only.

• Do not reveal your address, phone number or email address.
 

Mailing your correspondence:


• Place the correspondence in an unsealed envelope

• On a separate piece of paper include the following information so we know how to
forward your correspondence.

o If you are a transplant recipient: your full name and date of transplant
o If you are a donor family member: your full name, your loved one's full name and
date of donation.

• Mail your card or letter to the Living Legacy Foundation.
 

Living Legacy Foundation Mailing Address:


Living Legacy Foundation
11245 SE 6th St.
Ste 100
Bellevue, WA 98004

If you are a recipient writing to your donor family, the Living Legacy Foundation's Family
Services staff will review your card or letter to ensure confidentiality, then contact the donor
family to let them know you've written a letter and see if they're ready to receive it. Some donor
families prefer to wait a while and some choose not to accept correspondence. Most often they
are very grateful to receive a letter of thanks from recipients.

If you are a donor family member writing to your loved one's recipients, your correspondence
will be forwarded to the social worker at each recipient's transplant center and they will then
facilitate transferring your correspondence to the recipient.

Since your correspondence must be mailed to the Living Legacy Foundation first, then
forwarded, please allow enough time for your correspondence.

The Living Legacy Foundation in collaboration with all transplant programs supports written
communication between recipients and donor families. All correspondence is anonymous and
identities are kept confidential.

Some donor families and transplant recipients are interested in direct contact, and we are open to
facilitating that after some anonymous correspondence has occurred and if both sides are willing to
sign an authorization for disclosure of information.

If you need further information about writing to transplant recipients or donor families, please
contact a member of our Family Services team at l.877.275.5269 toll-free or visit our website at
http://www.livinglegacyfoundation.org.

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